If you have ever wondered what it would be like, here is a sample. I really want to do this with Kyli so all of our friends and family can see what SHE goes through, not Mike and I, but Kyli. This little girl last night dropped very quickly and it was at bedtime. She went from a safe number over 120 to 66 in less than an hour. She was asleep already when I had to check her sugars and she was asleep so quickly because of her low, that is what they do. The only reason I checked her was to get her CGM-continuous glucose monitor up and running for the night. If not for her CGM, I would not have checked her until 2am, the consequences of that are terrifying to me. Most likely, she would have been either unconscious or near death. God had a plan last night and I am just thankful for it.
http://m.youtube.com/#/watch?feature=youtu.be&v=OG7GX8xpbj4&desktop_uri=%2Fwatch%3Fv%3DOG7GX8xpbj4%26feature%3Dyoutu.be
This brings tears to my eyes, because in 4 years, this will be Kyli. She will be an amazing and beautiful little girl. She will be in tune more with her body than you and I most likely ever will, she has to be. She will know when she needs to stop playing to go check. She will be taking care of her self at least a quarter of the time. She is and will always be my Hero!
Tuesday, June 18, 2013
Sunday, June 2, 2013
My 30th Birthday Night
Yesterday, I turned the BIG 3-0. During the day, I was lucky enough to get a nap in since the day before I was hit with a stomach virus. I knew Mike had some birthday plans for us, so I wanted to make sure I was energized enough to go out and have fun. So the evening rolls up and I am feeling good, until Mike tells me we are going to leave the kiddos at their Grandma Bunny's. Here is the thing.. I love Grandma Bunny and especially the way she cares for our kiddos. She is amazing, but the hard part for me is giving over the control I do have Kyli's diabetes and entrusting ANYONE with it but me, this goes for my hubby as well. Why, you ask? Or maybe you think I am controlling..well, it's true but I have reason. I am a SAHM and when I have Kyli everyday 24/7, I can manage her diabetes damn well and I am VERY proud of that. It means, we are keeping Kyli healthy for the long haul. So, it is difficult to give that up. Plus, no one knows how her sugars run like I do, I can generally anticipate what is going on. Everyone should be proud of me though, I gave Mike a quick instruction of what he needed them to do, packed up all the kiddos stuff and sent them on their way. I knew Mike had a few surprises up his sleeve and I did not want to damper all his hard work.
I had an amazing night! Mike took me to Rodizio's! It is an amazing Brazilian Steakhouse and when we got there, friends and family met us there! It was so nice to sit and relax with everyone and watch us eat until we were ready to explode! We were not finished there and Mikey took me somewhere I have been wanting to go for YEARS! He took me to Sipping 'n Painting. These are the awesome places where you get to drink wine and be instructed on how to paint the picture in front of you! It was AWESOME! All 10 of us, men and women sat and painted! So COOL! Plus the painting turned out GREAT!! Oh, and I had a whole class of painters sing "Happy Birthday" to me, pretty awesome.
Here is where it gets sketchy. We managed her sugars while away through phone calls, thank goodness for cell phones. Her numbers were right on, what I did not take into account, being at Grandma's. When she fell asleep, she started to bottom out. At 2am she was at 119, well she had another 3.5 hours of insulin in her body to break down and I knew we would end up LOW. I had to wake her up and get her to eat, fruit snacks, milk, something to tide her over. Unlike usual nighttime wake ups, she was EXHAUSTED! She did not want to wake up. She told me "Go AWAY!" several times. This could not deter me, this was my child's life at stake. I had to wake her up. Last night, she broke my heart, she was so tired. All she wanted to do was sleep and I kept pushing her to wake up at 2am. It took me the better part of a half hour to get her awake and another 15 minutes to eat. She just cried. She cried for at least 30 minutes and I have never felt so sorry for her to have this awful disease. She cried loud enough that my sister who was downstairs on the other side of the house heard her and came up at 230am to see if everything was okay. If I do not shove sugar down her throat at 2am, she might not wake up the next morning. She has told me during our early morning binges, "My tummy hurts." I have to tell her, you have to eat it. Now, I am not a breakfast person, so I can imagine how she feels being awoken and force fed sugar. I would feel sick too. But the tears we had last night, this was one of the first times, besides hospitalizations that I have really cursed diabetes in my head. It is not fair to have to wake a 3yo, it just is not. She finally ate a cake pop and then somehow ate fruit snacks too. Apparently I was half asleep because the hot milk I had warmed was left in her room and she drank that too. BAD MOVE! At 5am, when I woke to check her 344! God must have stepped in because we managed to wake up under 200, somehow.
I will say there is a plus out of all of this, last night during her tears, I had the privilege of holding and comforting my child. While I was almost begging her to stop crying, I got to hold her and snuggle her and tell her it would be ok. She trusts me because she finally came around and by the time I was tucking her back in, I had smiles and "I Love You Mommy." But I am going to tell you last night was a rough birthday night. If God could have given me one birthday present, I would have gladly taken Kyli's diabetes from her.
I had an amazing night! Mike took me to Rodizio's! It is an amazing Brazilian Steakhouse and when we got there, friends and family met us there! It was so nice to sit and relax with everyone and watch us eat until we were ready to explode! We were not finished there and Mikey took me somewhere I have been wanting to go for YEARS! He took me to Sipping 'n Painting. These are the awesome places where you get to drink wine and be instructed on how to paint the picture in front of you! It was AWESOME! All 10 of us, men and women sat and painted! So COOL! Plus the painting turned out GREAT!! Oh, and I had a whole class of painters sing "Happy Birthday" to me, pretty awesome.
Here is where it gets sketchy. We managed her sugars while away through phone calls, thank goodness for cell phones. Her numbers were right on, what I did not take into account, being at Grandma's. When she fell asleep, she started to bottom out. At 2am she was at 119, well she had another 3.5 hours of insulin in her body to break down and I knew we would end up LOW. I had to wake her up and get her to eat, fruit snacks, milk, something to tide her over. Unlike usual nighttime wake ups, she was EXHAUSTED! She did not want to wake up. She told me "Go AWAY!" several times. This could not deter me, this was my child's life at stake. I had to wake her up. Last night, she broke my heart, she was so tired. All she wanted to do was sleep and I kept pushing her to wake up at 2am. It took me the better part of a half hour to get her awake and another 15 minutes to eat. She just cried. She cried for at least 30 minutes and I have never felt so sorry for her to have this awful disease. She cried loud enough that my sister who was downstairs on the other side of the house heard her and came up at 230am to see if everything was okay. If I do not shove sugar down her throat at 2am, she might not wake up the next morning. She has told me during our early morning binges, "My tummy hurts." I have to tell her, you have to eat it. Now, I am not a breakfast person, so I can imagine how she feels being awoken and force fed sugar. I would feel sick too. But the tears we had last night, this was one of the first times, besides hospitalizations that I have really cursed diabetes in my head. It is not fair to have to wake a 3yo, it just is not. She finally ate a cake pop and then somehow ate fruit snacks too. Apparently I was half asleep because the hot milk I had warmed was left in her room and she drank that too. BAD MOVE! At 5am, when I woke to check her 344! God must have stepped in because we managed to wake up under 200, somehow.
I will say there is a plus out of all of this, last night during her tears, I had the privilege of holding and comforting my child. While I was almost begging her to stop crying, I got to hold her and snuggle her and tell her it would be ok. She trusts me because she finally came around and by the time I was tucking her back in, I had smiles and "I Love You Mommy." But I am going to tell you last night was a rough birthday night. If God could have given me one birthday present, I would have gladly taken Kyli's diabetes from her.
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