Friday started like any other day for us, get Noah to school and then we have errands to do. On this day, we had our quarterly appt with the TEDDY (The Environmental Determinants of Diabetes in the Young) study. Foe more info on this click here. Anyway we went through the usual magic lotion, questions, and blood draw. Kyli was antsy to wait for her A1C results, we have always waited, it is an option, so we were waiting in the playroom. Miss Ruth came in and told us it was going to take a little longer because they were waiting for another persons test so that would have to run it again...this struck me as odd because I had been under the impression it was already being tested, but I told her we would wait. A few minutes later I was asked to go talk with Nurse Michelle, while it was an odd request, I had discussed Noah with her earlier and thought she may have come up with something else to discuss. To my surprise, I was blindsided with the fact the Kyli's A1C was elevated. Normally a person A1C is below 5, Kyli's was 7.4 but her sugars were only 120. I was shocked. I had been waiting for bad news for 9 months since we had the original antibody in her system, but her last results said the antibodies were less for the first time. So I was hoping they were leaving her system. Because her A1C was high, I had to talk to one of the endocrinologist doctors before I left, he instructed me to monitor her sugars for the weekend and that he would be seeing us Monday to discuss the results. Is it really necessary to say I cried and then I went straight to my Mommy.
Mom and I had lunch, I discussed my shock with her. Kyli ate great and was her happy spunky self. I had been instructed to wait 2 hrs after each meal to check her sugars, it was 2 long hrs... So while Kyli was sleeping during her nap, the 2 hr mark hit. I cleaned her fingers and did her test. Her sugars rang in at a high 365, they should be under 200. It was a blessing Noah was at school and Kyli was sleeping, the tears truly hit at this time, there was no denying it, Kyli had become diabetic. At this point I called our doctor because he never told me what was high enough to cause concern. Kyli's numbers were a concern, so now I was told to watch her numbers until after breakfast and call him in the morning. Well, things just got worse and her sugars the next morning were 404. So on Saturday Mike and I took Kyli to the Barbara Davis Center to get a short breakdown on how to give Kyli injections. Yesterday, Kyli received her first injection on insulin. Kyli was diagnosed with Type 1 Juvenile Diabetes. She is not even 3 years old. She is my Spunky Monkey and she will take this is stride, but I have to tell you, I am scared for her future and our future. I have been through a lot already with my Mom, I am determined to make things go more smoothly with Kyli.
Tomorrow we go back to the Barbara Davis Center in Aurora to meet the team. Let me tell you so far I LOVE THEM!! This is only Day 3 with Kyli and her diabetes and I do not truly know what to expect. My heart hurts so much and if I could I would take this from her in a heartbeat, but at least I know the Barbara Davis Center is already there to support us.
